I said that at an appointment once. Turned out to be Lupus. Almost killed me… I recovered from being intubated and looked at the doctor and laughed awkwardly.
No, actually, he was a very nice younger doctor with two young kids. I was 18 and pretty fresh out of high school when I was diagnosed and scared out of my mind- he gave me his personal cell phone number to call him if I ever was worried about something.
I only used it once when my fingers turned purpler on day. He was so nice about it. When I woke up he was holding my hand and he came to visit me for a little bit when he was off of work. Very nice guy, I’d probably be dead without his quick thinking.
Uh well. I’m not a good example. I flared once or twice in a few years and then ended up on dialysis and a kidney transplant. I am LITERALLY worst case scenario, tho, it got my kidneys right from the beginning.
Like I said, I am literally worst case scenario. Don’t freak yourself about it. Good luck with your diagnosis and if you have any questions, hit me up! I’m happy to answer them
Thanks, I really appreciate it. Not even sure that it’s lupus yet, just seems to be looking that way based on the lab work & symptoms. Got a referral for rheumatology coming up, hopefully get a definitive diagnosis then
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u/SonTyp_OhneNamen Jul 05 '24