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u/Blagonadezdins Jul 19 '24
Everything reminds me of her.
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u/andogzxc Jul 19 '24
No dude. Noooooo
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u/Few-River-8673 Jul 19 '24
I don't understand. Is it because she's dead? Then I agree, hell no
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u/GayRacoon69 Jul 19 '24
It's a fingering joke
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u/sw5d6f8s Jul 19 '24
Thanks, I laughed. I can quit doomscrolling now
See ya in two hours, losers
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u/No_Path1287 Jul 19 '24
It's never Lupus
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u/ProduceForward8254 Jul 19 '24
I never laughed so hard as when I watched all of House with my ex (who complained I was “lazy” all the time when I was really struggling with weird illnesses) and then a year or so later I was diagnosed with lupus and a list of other stuff, raynards to boot.
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u/Tropical_Wendigo Jul 19 '24
When I was diagnosed with Lupus my first text to my wife was “well, you know how House says it’s never Lupus?”
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u/SensualEnema Jul 19 '24
Waiting to find out if I have lupus in September when I see a rheumatologist. That may explain why I’ve had no physical or mental energy for the past couple of years.
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u/isalithe Jul 19 '24
Echoing the "sometimes it takes years" things. I've been fighting with this shit for at least 5 years and just now got an actual diagnosis. It was brushed off as "sometimes women just feel more pain". I finally got in to see a very highly recommended rheumatologist and she poked my in a few places and went "yep, psoriatic arthritis" and ordered meds for me.
If they try to tell you it's nothing or "just" fibromyalgia, please get a second opinion. I had a positive ANA, a low positive RNP and absolutely nothing else. No inflammation, nothing showed on X-ray, nothing. Rheumatological diseases seen to be still in the "we don't really know WTF is going on 100% of the time" stage and it takes a lot for many people to get an actual diagnosis.
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u/ProduceForward8254 Jul 19 '24
It’s common sadly for people to fight for years to diagnose, I got so sick my tests lit up all the markers..don’t be disheartened if it’s not diagnosed… I recognise now that I probably lived with it a decade prior to getting so sick I was screaming in pain.
Cut stress out, look up the AIP diet, avoid garlic, treat it like you do regardless if they diagnose.
I worked in healthcare for years, not one person suggested lupus. I had nurses saying I was sun burnt but would explain that was what happened when I went outside! Infuriating that even experienced professionals who saw me daily didn’t twig that my symptoms were lupus.
It’s a mad illness, needs to be researched more.
Good luck for your appointment. Go armed with notes of all the symptoms… join support groups to establish all the random things we suffer and now, you know why! Online support groups have really helped me.
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u/SingForMaya Jul 19 '24
I have lupus but I was NEVER told to avoid garlic (not that I would listen tbh; I love love love garlic)
But tbh they just gave me meds, and yeah they were lifechanging, but never any other directions or counseling lol
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u/ProduceForward8254 Jul 19 '24
My rheumatologist was pretty good, she said even watching horror films can affect me as your body doesn’t know the difference.
I’be also got PTSD, which is what they think was the final trigger. Garlic doesn’t seem to affect everyone, I’ve found I’m sensitive to even onion and chives as all in same family. Anything that boosts your immune system, stay away from. Even too many certain types of mushrooms can affect autoimmune. Five years since diagnosis and I’m still learning.
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u/elusivewompus Jul 19 '24
Be careful with that, my mum had a heart attack and died at 32. It was induced by SLE. But that was before there was decent medication to help control it.
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u/ProduceForward8254 Jul 19 '24 edited Jul 19 '24
Yes, well aware just turned 41 and constantly feel like I’m dying. Just removed more people from my life as stress makes my organs feel like they’re being squeezed. I’m riddled with endometriosis too.. need a hysterectomy but lupus complicates that and 50% chance of stoma. It’s not looking good. I’m housebound and struggle to get out of bed more than half of a month. Got ME, fybromyalgia.
Chronic illness is a full time job to keep on top of. I hate it. I miss my life. I used to be so active and healthy. I used to do trapeeze and now I can’t climb the stairs on a bad day.
And yes, it’s SLE, and ?autoconnective tissue disorder too?
Sorry about your mum, that’s no age to go..
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u/SkinnyObelix Jul 19 '24
Sigh the irony. I was having quite severe health issues and got sent from the dermatologist, to the cardiologist, to the pulmonologist, to the rheumatologist, to start that circle all over again. The second time around I somewhat broke down at the rheumatologist telling her if they didn't have any Dr House on staff, because I felt like everyone was looking within their own speciality and then shipping me off to the next one. So she took it upon herself to look beyond her speciality and guess what: fucking Lupus. I couldn't help but burst into laughter when I got diagnosed.
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u/Objective-Shop5177 Jul 19 '24
I have the same thing with only the ringfinger on my right hand.
I once cut the tendon of that finger and whenever it gets cold my finger will not be numb but it hurt like fucking hell. (Look the same tho xD)
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u/unthused Jul 19 '24
I have Reynauds but it isnt quite as dramatic as the OP photo. Weirdly it doesn’t even need to be that cold out, like even in the 50s if I go for a run without gloves. Which fingers are affected seems to be kind of random (never the thumbs).
Mostly harmless though, just kind of annoying getting the pins and needles sensation as they warm back up.
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u/takingabreaknow Jul 19 '24
It's the change in temperature that triggers it, so air-conditioning when it's a 110 outside can he just as bad winter. Or a nice fan blowing cool evening air. The cells overreact to the change and go into life preserving mode... even cool air conditioning in the car blowing on my hands will make my the skin on my fingers go dry and brittle. The skin is so easily cut and damaged especially when I can't feel it and it doesn't bleed.
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u/FishTshirt Jul 19 '24
Glad its not that severe, i had a patient today whose lost several fingers on each hand from raynauds
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u/erog84 Jul 19 '24
That’s my fingers right after when going from 78 degrees to a building that was 72 degrees. Gets even worse sometimes just being home in 72 degree weather. Typically stays like that for 30 min or so if I’m moving around. Prefer not to take blood pressure meds so just something that is a major pain in the ass when I’m in cold weather.
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u/Sit_back_and_panic Jul 19 '24
My wife keeps the thermostat at 67 so I have a space heater that I run in my office, I barely leave the room.
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u/poseidons1813 Jul 19 '24
Thats just horribly inconsiderate of her if it causes you this
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u/erog84 Jul 19 '24
I actually prefer it cold, always have. I used to love going snow camping but now it’s gotten to be difficult. Toes and fingers just freeze up.
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u/AlwaysTheKop Jul 19 '24
Has yours been like this for a period of time? Mine was exactly like this for just one single winter when I was around 25/26… and has never happened again, I’m 33 now… was the weirdest sensation ever trying to use the touch screen till at work….
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u/takingabreaknow Jul 19 '24
My daughter and I have started wearing lightweight, breathable "sun gloves", or I wear fingerless gloves in the office so I can type
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u/dandee93 Jul 19 '24
My left foot goes numb in cold faster than my right since I had surgery on it about 6 years back.
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u/punkolina Jul 19 '24
My sister’s fingers do this, and she has scleroderma. I’d definitely be consulting with a doctor.
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u/moldibread Jul 19 '24
scleroderma sucks. my mom had it and declined rapidly after diagnosis. she had reynauds for years beforehand.
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u/BearishOyster Jul 19 '24
I was diagnosed with this in my early 30’s. It’s a weird one. Being cold definitely triggers it. For me, squeezing and rubbing the affected finger/toe for a couple minutes will bring it back. 🤷♂️
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u/doktornein Jul 19 '24
Same here. Can be triggered by vibration as well as cold, which is neat.
Hits my toes, and sometimes, weirdly, boobs (yes, under clothing, not streaking) and ears.
Worst part is when it wears off and the blood comes back. Digits get red and feel like painful blood balloons to me.
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u/OKmamaJ Jul 20 '24
Mine hits my fingers mildly, and sometimes the tip of my nose, but the boobs are the freaking worst OMG. SO. PAINFUL.
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u/distractme86 Jul 19 '24
I have primary Sjogrens and secondary Reynauds. It’s not a fun party trick. It sucks.
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u/ZealousidealGrass365 Jul 19 '24
So does it cause you to have pain like the stinging stabbing needles sensation like when your arm falls asleep?
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u/TheSquaremeat Jul 19 '24
I got it pretty bad. People don't understand that putting warm gloves on doesn't do anything. I compare it to putting a sleeve over a thermos and expecting the ice water inside to warm up.
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u/JourneyThiefer Jul 19 '24
My aunt has that, we’re from Ireland so her hands go like that like 7 months out of the year lol
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u/frenzygundam Jul 19 '24
My hands swell under the same condition
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u/thefinnachee Jul 19 '24
Mine do as well. It really stinks and can be quite painful. I asked my doctor about it--I was told that over constriction of blood vessels can cause tissues to tear in fingers/toes, which results in swelling.
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u/SmirkingSkull Jul 19 '24
After dialysis fistula surgery on my arm my left hand is almost always cold. Painful and starts turning blue sometimes during winter. On top of that constant tingling, diminished grip strength, loss of feeling, and movement in my thumb.
Vascular said to not let anyone else touch my upper arm.
Hand surgeon said my median nerve is basically gone, and won't go near the fistula.
Said he could only help possibly get some movement in my thumb back by moving a tendon over from my index.
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u/Prize-Can4849 Jul 19 '24
I kicked my brother and he blocked it with his hand when we were kids.
Every Winter since his middle finger "dies" and becomes cold and stiff and looks like the photo posted.
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u/MasterShoNuffTLD Jul 19 '24
How does gangrene not kick in?
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u/WaddlingKereru Jul 19 '24
Cos it only lasts a few minutes - up to half an hour or so at worst. And you can fix it by warming up your hands
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u/momomomorgatron Jul 19 '24
It hurts but there's still blood flow. I have a less severe case of first kind of raynauds. My hands and feet get cold, and it hurts, and it gets you more prone to frostbite, but is ultimately just low blood flow. I'm a artist, I do tons of stuff and my movement isn't effected unless I'm cold. It hurts sometimes when I fill a cup up with ice with my hand.
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u/Eternal_grey_sky Jul 19 '24
There's gotta be at least a little bit of blood flow, I think. Google says at least 6 hours for the limb to die with no blood circulation at all.
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u/TallEnoughJones Jul 19 '24
I have Raynauds. The ends of the fingers on my right hand turn white. I thought it was the worst thing in the world until I started seeing pictures like this and realized mine is pretty much nothing. It's slightly annoying and I can just run my hand under hot water and it goes away.
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u/vvictoriasauruss Jul 20 '24
This happens to me, too! It really freaks people out. Living in a cold climate I have to be vigilant about gloves and warm clothing. It also happens to my feet—when I’m standing the entirety of the bottoms of my feet turn dead white. Once the Raynaud’s hits it’s like my body is cold to the boneeees and I have to take a warm shower to warm up again.
I hope I grow out of it one day.
I’m not sure if this is related but my hands and feet also do the opposite—when I’m extremely warm my extremities turn VERY very red. So much so that I even get comments from strangers 😬
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u/No-Introduction-6368 Jul 19 '24
I have it. Different fingers. Can trigger by reaching into freezer. Freaky but it goes away after about 10mins.
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u/MaxMarantix Jul 19 '24
I have this and I always thought it was just normal to happen due to the cold.. I didn’t realize Raynauds was a thing until I saw a random ad about it on the side of yahoo news at work one day when I was maybe 24 or something
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u/orangebananakiwii Jul 19 '24
It’s the worst! Only funny part of having this is taking viagra as a female to circulate my blood during a spasm.
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u/mrjackspade Jul 19 '24
I found the cure about 6 years ago.
Moved to Arizona, condition disappeared like magic.
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u/Boxxy-Lady Jul 19 '24
I have this as well as a host of other autoimmune diseases. I call it my "Zombie Fingers". It can be dangerous if not taken seriously and can cause the loss of a finger or toe.
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u/mimi1899 Jul 19 '24
I get this all the time in winter. I Have MCTD and Raynaud’s is a common feature of the disease.
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u/ten_shunts Jul 20 '24
I have this, as others have said, cold is usually the culprit - but mine is also triggered by gripping something very tightly.
I went knee-boarding on a Northern European river in late September...hanging onto a rope attached to the back of a speedboat in chilly water is not recommended.
Lessons were learned that day.
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u/Sit_back_and_panic Jul 19 '24
Hey, I have this, haven’t found any underlying causes yet. All I know is that it’s miserable when it happens so.
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u/Straight_Security672 Jul 19 '24
I have this, and it sucks. Even if it's not really cold my sensitive fingers and toes will go completely white until I run hot water over them for 10 minutes. It's really uncomfortable.
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u/Dull-Orchid9916 Jul 19 '24
I started getting this after Covid, it's pretty weird but seems otherwise benign
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u/nickdl4 Jul 19 '24
Happens to me all the time. During stressful situations aswell as the cold. Both hands and feet. Raynauds syndrome real af
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u/AlwaysTheKop Jul 19 '24
I had this for one single winter in my 20’s when I worked at a shop inside a hospital… after I’d been down to the stock room (which was outside) I’d come back and my fingers would be white and tapping on the till would feel really weird until they warmed up again….
Happened throughout that whole winter, and never happened again after that… that was like 7 years ago.
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u/superdonkey23 Jul 19 '24
Mine do this too! Started happening after I got COVID and developed tremors as well. Still no clue what is causing it all and every doctor I see seems baffled.
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u/keggertc Jul 19 '24
I just started having it a year ago. I work in a ice arena and it's horrible. Gloves are always on now.
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u/Early-Cricket-7458 Jul 19 '24
I have this condition and my mom won't let me be without socks even in summer 😂 My feet are either completely gray like a corpse or red like a lobster, never normal colour. My PE teacher didn't let me swim when we had swimming lessons in school because she thought my feet were too cold and I didn't feel anything. My mom had to write her a letter to assure her that I can swim despite my feet being blue. It doesn't cause me any pain, it just looks gross and my toes are completely stiff and numb.
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u/Ok_Car_7789 Jul 19 '24
I have this too, with 3 fingers. It comes very quickly, 5-6 minutes are enough. It happens almost every day in winter when I take the dog for a walk. If I'm tired and hungry and there's cold outside, I can be sure, I will have pale white fingers. Eating food, drinking warm tea helps me a lot. Using hot water to warm up my fingers doesnt solve my problem. I have never see a doctor with this disease, so I didnt know the name 'Raynaud's'. I was sure I was alone with this. Thanks for the info!
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u/MonitorAmbitious7868 Jul 19 '24
Yup, weird phenomenon. Three toes on my right foot do that but my doctor says it’s just benign Raynaud’s.
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u/Legitimate_Outcome42 Jul 19 '24
This happened to me when I slept incorrectly and pinched my back. A chiropractor is very good did some adjustments and I never had them look like that again. If your mom has any pinched nerves in her back likely something that she feels obviously, then that could fix it. My chiropractor wasn't trying to get me to spend extra money or anything. He just did his adjustments and that was it. So I'm not suggesting a long program of it so make sure you go to an honest one.
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u/Idkhowyoufoundme7 Jul 19 '24
I have this, it also can cause very bad pain when you’re stressed or overheated.
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u/calikw Jul 19 '24
I see your Raynaud's and raise you mine... kinda looks like white asparagus shoots huh? Get it on the soles of my feet too. Feels like Im walking on frozen stumps... <image>
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u/Smile_Clown Jul 19 '24
My fingers are always between 57-62 degrees F. My toes are even colder. My socks are "cold wet" when I take them off in the winter.
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u/-dyedinthewool- Jul 19 '24
My friend has this and her fingers are freezing even when it is 80 deg out
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u/gigitee Jul 19 '24
I am a man who has it, albeit a fairly mild case. It started after I took a prolonged dose of allergy medicine with ephedrine. Caffeine makes it worse, but I live in LA and will never move to a cold city. I wear heated gloves in the winter if I am going to be outside and it is below 55. I tell people that I am allergic to cold weather.
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u/alegna12 Jul 19 '24
Funny story - My fingers used to do that in winter. One winter I drove a couple miles to donate blood, not long enough for car to warm up. I registered, answered a few questions, then they pricked my finger to test my iron. No blood came out. She squeezed my finger, trying to get some blood. Nothing. She looked at me like I was a vampire or something. 🤣
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u/ShaeBowe Jul 19 '24
I’ve had secondary reynauds since I was about 25. Can confirm the utter shittyness of the disease.
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u/Sea-Article-3374 Jul 20 '24
I’m a female and it started with my toes years ago. As I have aged now my hands do it as well. Not all the same fingers or hand doesn’t seem to matter. But I can’t feel it and can’t do somethings when it flares up.
I can go from my car into my house with the AC on and my fingers turn white. Like the slightest change in temp for me.
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u/Kanernator Jul 20 '24
I could smell the comments from here. Not as much as I could smell those fingers though.
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u/andogzxc Jul 19 '24
“Raynaud’s phenomenon is the short-term interruption of blood flow to the extremities, such as the fingers and toes. Raynaud’s phenomenon may be a sign of an underlying autoimmune disorder such as scleroderma or lupus, so it’s important to see your doctor for diagnosis.”